by Erinsads | Sep 23, 2022 | Blog
This September, Hailey competed in the national and world amateur divisions for aerial silks. “Doing aerial silks always makes me feel free, like I’m flying,” says Hailey. Aerial silks is a combination of contemporary dance and acrobatics, performed while suspended in...
by Erinsads | Sep 19, 2022 | Blog
Jimmy, Jackie’s son Crissy, Jackie’s daughter Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? It was so common for our family to fall over having seizures, and back in the 1960s, they weren’t thinking...
by Erinsads | Sep 6, 2022 | Blog
Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? Jeff & his son at a baseball game I was diagnosed with ARVC in May of 2021, but I got my ICD in August of 2017. Given that ARVC is a genetic disease, I guess I had it in...
by Erinsads | Sep 6, 2022 | Blog
Lizzie Name: Lizzie How and when were you diagnosed? I was diagnosed with ARVC in the middle of a career of ultramarathon running at the age of 31. I started to develop shortness of breath and weakness in my legs during my training runs, and not long after that I...
by Erinsads | Sep 2, 2022 | Blog
Sandy and her son, Jackson SADS billboard placed by Sandy in Binghamton, NY Sandy Cowin is on a mission to raise awareness about Brugada Syndrome – a rare genetic cardiac condition that affects the heart’s electrical system. She’s raised awareness through sharing her...
by Erinsads | Aug 25, 2022 | Blog
My story would probably best be described as a roller coaster, with lots of ups and downs. I grew up between two brothers, and we did everything together. We played from sunup to sundown – basketball, football and baseball, and we had a pool, so we swam...
