Mona: My Journey with LQTS and Cancer

In 2003 I was a very physically fit female Firefighter/Paramedic who was running full Marathons. I was 35 years old, a 14-year veteran of the Fire Service with not one event that would indicate I had any cardiac issue at all. Then, after a routine physical conducted...

Celebrating our SADS Moms

This Mother’s Day, we want to give a huge shoutout to all of our SADS moms! Whether you have a SADS condition, or are caring for a child with a cardiac arrhythmia, we want to thank you for being the heart of our families.  Being a mom in a SADS family comes with...

Keona: In Memory of Elijah and Chloe

Can you tell me a little bit about your family’s SADS journey? I have one surviving daughter, who is 14 and has Long QT Syndrome. In my family, we have an aunt with Long QT Syndrome – who is the only reason that I ever knew my son had it, which led to me knowing I had...

Pregnancy Stories: Kellie Moore

My daughter, Sophia, will be four in April. She was born in 2017. I really didn’t have any huge concerns going in. It was just very exciting. But of course, I wanted to be very careful and make sure that we were taking proper precautions as needed. And my OB-GYN...

SCA Survivor Stories: Lindsay Casey

On January 13th, 2019, I woke up to a seemingly normal Sunday. I was a healthy, 30 year old mother sharing breakfast with my 11 month old son and my husband, Scott. When I went to get our son ready for church, Scott had a feeling that he needed to come check on us....

SADS Spotlight: Cian Bennett

Name:  Cian Bennett Age:  13 Diagnosis:  Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT) Age of Diagnosis: 13 What led to your diagnosis?  I had a fainting episode at home and my pediatrician sent me to a cardiologist.  My first visit was okay and they...