by Erinsads | Jul 23, 2020 | Blog
Name: Cian Bennett Age: 13 Diagnosis: Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT) Age of Diagnosis: 13 What led to your diagnosis? I had a fainting episode at home and my pediatrician sent me to a cardiologist. My first visit was okay and they...
by SADS Foundation | Apr 20, 2020 | Blog
By Kerri D. and the SADS FoundationUpdated February 25, 2026 | 5 minute read In 2014, Kerri collapsed at home. Her pulse was racing at 276 beats per minute. She was rushed to the hospital, where her heart stopped – then restarted in a normal rhythm. After multiple...
by Erinsads | Jan 13, 2020 | Blog
Name: Jaclyn K. Age: 38 Which SADS condition do you have? LQTS1 How are you treated? Treated with beta blockers from age 14 and AICD implant at age 24 (on my 4th device currently) When were you diagnosed? I was CORRECTLY diagnosed after 9 yrs of fainting and multiple...
by SADS Foundation | Oct 16, 2019 | Blog
At just eight months old, Lila survived sudden cardiac arrest with no warning — and ten years later, she’s thriving, reminding families that connection and community can make all the difference. By Jen W. and the SADS FoundationUpdated February 23, 2026 | 4 minute...
by Erinsads | Aug 19, 2019 | Blog
by Alexis H. Since receiving my diagnosis of LQTS Type 5 at the age of 12, I had always wanted to go to a heart camp. The children’s hospital where I received care in Alberta, Canada had posters for a heart camp in California on the wall but when I asked my doctor...
by SADS Foundation | Mar 18, 2019 | Blog
After years of fainting episodes and misdiagnoses, Chevy’s family finally uncovered Catecholaminergic Polymorphic Ventricular Tachycardia—and began rebuilding his life with strength and hope. By Chelsi M. and The SADS FoundationUpdates February 19 2026 | 7 min read...
