by SADS Foundation | Oct 6, 2025 | Blog
written by Michael Grivas I am 27 years old and I come from Greece. Four years ago… my life suddenly changed. When I learned that I have Brugada Syndrome, yes… I felt like the ground was slipping away beneath my feet. In 2021, I was hospitalized with acute myocarditis...
by SADS Foundation | Sep 22, 2025 | Blog
When Shane and Kristi’s middle son suddenly lost his hearing in 2022, their son underwent genetic testing to try and find the cause – which revealed a genetic variant for Long QT Syndrome Type 2. Kristi and her family were shocked – until they realized...
by SADS Foundation | Sep 17, 2025 | Blog
When Christie Tolosky died suddenly in 2005 at just 24 years old, her family and friends were in shock. She was a seemingly healthy and active young woman who loved everything about life, especially horses, and who was planning to go back to school for a masters...
by SADS Foundation | Sep 16, 2025 | Blog
by Frances S. In the spring of 2025, I went for my yearly physical and it was discovered via EKG that I was having a decent amount of premature ventricular contractions or PVCS. After a thorough health history, which included some anecdotes of my past as a very active...
by SADS Foundation | Sep 10, 2025 | Blog
In 2019, Amy lost her husband, Adam, to undiagnosed Brugada Syndrome – leaving family, friends and their two young boys, who were just three and six years old at the time. Amy now serves on the Brugada Syndrome Steering Committee at the SADS Foundation to help other...
by SADS Foundation | Aug 20, 2025 | Blog
At just 16 years old, Pennsylvania high school student Francesca is a rare heart condition advocate. She’s independently partnering with mega jewelry store, Kendra Scott, to raise awareness and funds for the SADS Foundation. “I love their jewelry and how it makes me...
