Preparing for Your Surgery

Preparing for Your Surgery If you have a SADS condition, you may be looking at having several types of surgeries for your heart. Below, you’ll find a guide to preparing for your heart surgery, and what each surgery entails. General Tips: Preparing for a Surgery...

Erin’s ARVC Awareness Story

I have always been an active person, particularly when it comes to exploring nature. Throughout my 20s, I was often backpacking, hiking, or going on long bike rides. I first realized something was wrong when I began fainting while running. I couldn’t figure out...

Summer’s SCA Survival Story

In May of 2022, Summer went into Sudden Cardiac Arrest (SCA) on her front porch. Thanks to her husband’s quick actions, she survived. After her diagnosis of Long QT Syndrome (LQTS) Type 1, Summer is on a mission to spread awareness about CPR – and “invisible”...

Long QT Syndrome on a Cheerios Box: Adeline’s Story

Adeline was diagnosed the day after birth with Long QT Syndrome Type 2. Now, Adeline is one of ten Children’s Miracle Network National Champions, and is sharing her LQTS story on a Cheerios box in Costco throughout the month of May. “Adeline was born a healthy,...

My Experience Participating in a Clinical Trial for LQTS

written by Melissa If you’re anything like me, hearing the term “clinical trial” generates some conflicting reactions. There’s excitement over the possibility of a game-changing treatment on the horizon, and at the same time, there’s some fear in the idea of...