by SADS Foundation | Feb 18, 2025 | Blog
written by Landri My day-to-day life generally consists of school, friends, playing video games, and participating in activities that interest me. Unlike the average teenager, one of my favorite things about school is learning new things and applying that knowledge in...
by SADS Foundation | Feb 13, 2025 | Blog
Running your first marathon while raising money for the SADS Foundation is no easy feat; neither is figuring out how to tell your 9-year-old she has Brugada Syndrome, so Camila “Mila” did something inventive. She used the marathon as a vehicle to tell her daughter,...
by SADS Foundation | Dec 20, 2024 | Blog
by Kiersten Rock-Torcivia Who is this girl? What is on her chest? On her chest, just below her left collarbone, is a black oval outline shadowed with gray. Slashing diagonally through the upper part of the shape sits a vibrant raw pink scar. From the upper part of the...
by SADS Foundation | Dec 17, 2024 | Blog
Nine months ago, on March 14, 2024 (National Pi Day, to be exact), something happened to me that didn’t make sense No matter how many highly trained, world-renowned doctors at the Cleveland Clinic diagnosed and treated me, they still can’t explain exactly why what...
by SADS Foundation | Oct 30, 2024 | Blog
17 year old Delainee dreams of a day when she can connect with hospitalized children bringing them comfort and connection the way her mother, Kerri, did the many times DeLainee was hospitalized, “I wish I could share my experience by handing the pillows out.” DeLainee...
by SADS Foundation | Oct 24, 2024 | Blog
“Telling you all of that is like telling someone’s else’s story,” Tana said as I interviewed her on a bright, sunny fall day in October. Nine months earlier in January 2024, her days were dark and unnumbered. For seven days she laid in a medically induced coma...
