by SADS Foundation | May 23, 2024 | Blog
Adeline was diagnosed the day after birth with Long QT Syndrome Type 2. Now, Adeline is one of ten Children’s Miracle Network National Champions, and is sharing her LQTS story on a Cheerios box in Costco throughout the month of May. “Adeline was born a healthy,...
by Erinsads | May 15, 2024 | Blog
written by Melissa If you’re anything like me, hearing the term “clinical trial” generates some conflicting reactions. There’s excitement over the possibility of a game-changing treatment on the horizon, and at the same time, there’s some fear in the idea of...
by SADS Foundation | Apr 9, 2024 | Blog
Nicole was diagnosed with Long QT Syndrome Type 1 at birth. Today, she’s in her last semester of medical school – and hopes to help others with rare diseases and disabilities access the support and expert medical care she received as a child with a SADS condition....
by Erinsads | Mar 29, 2024 | Blog
In June 2024, the SADS Foundation is bringing the LQTS and CPVT patient communities together for an FDA Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD). This meeting gives the FDA and other key stakeholders — including researchers, biopharma...
by Erinsads | Mar 7, 2024 | Blog, Forum
View Current Clinical Trials for SADS Conditions
by Erinsads | Feb 27, 2024 | Blog
In 2016, Andy decided to complete a marathon in all fifty states. He wanted to finish this challenge quickly, and set a goal of running 10-12 marathons each year. In 2020, Andy experienced some concerning symptoms while training – including a high heart rate and...
