Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
Lead Extraction Story
In December 2015, I found out I had a small problem on one of my leads in which it had a higher threshold pacing causing it to use more energy to...
I Learned I Was Not Alone
As I sit here on train to Mineola Station I know one thing for sure: I am confident . Confident of the condition I was born with, the limits I...
No more doom, no more gloom
If you've recently come across this diagnosis, whether in yourself or a family member, chances are things are looking a little dark right now. And...
List of questions for generator change /lead extraction
What kind of anesthesia would be use and why? What antibiotics are going to be use to prevent infection? If I am allergy to certain antibiotics,...
List of Questions prior to ICD implant
Why is this particular brand the best one in my circumstances and not the other brands (the brands are Abbott (formerly St Jude), Boston Scientific,...
List of general questions to ask for ICD patients
In the event I should get therapy (shock) from the ICD, what should I do? Should I just call the office and wait for response? Should I go to the...
Questions to ask at ep/cardiologist appointments
Questions to ask at ep/cardiologist appointments: Why am I consider at this risk level at the current time? Will my risk level change overtime? Or...
Questions to ask at electrophysiologist/ cardiologist appointments
Questions to ask at electrophysiologist/ cardiologist appointments Why am I consider at this risk level at the current time? Will my risk level...
23rd Annual No Ball at All
This is Abrielle Watschke. In 2014, she survived an out of hospital sudden cardiac arrest. Today, she is thriving with Long QT Syndrome. Read the...
When should I worry?
My daughters have a life-threatening condition and on most days, I'm not worried. Should I be worried? My sister, Christie, died suddenly when she...
Living with a SADS condition story
My story begins when I was 11 years old. When I was 11 years old, I had passed out while walking up a flight of stairs in school. I did not know...
One Long QT Journey
My experience with Long QT Syndrome began at about age 7, or at least I think it did. One of the funny things about this condition is you don’t know...