by kymera_editor | Apr 3, 2019 | AEDs, Long QT Syndrome, Parenting
She appears “normal” and healthy on the outside. She does everything your 4 year old does. She laughs the same. She throws a temper tantrum the same. She thinks potty humor is the funniest thing ever just the same. She comes into your room 20 times every night before...
by kymera_editor | Apr 3, 2019 | Long QT Syndrome, SADS Spotlight
Name: Jaren BergAge: 10Which SADS condition do you have? LQTS Type 1 When were you diagnosed? November 2017 at age 9 How are you treated? Nadolol 40mg, Left Cardiac Sympathetic Denervation, ICD How/when were you diagnosed?We went to Mayo in November 2017 for a second...
by kymera_editor | Mar 14, 2019 | Long QT Syndrome, SADS Spotlight
Carter (left), mom Katie, and John (right) Name: John and Carter Cox (Twins) Age: 3Which SADS condition do you have? Long QT type 2 When were you diagnosed? Birth How are you treated? Propranolol three times day. Potassium two times a day. AED with...
by kymera_editor | Mar 13, 2019 | Long QT Syndrome, Managing Multiple Diagnoses
We first contacted SADS when my middle child was 8 years old and had several “episodes” that looked like seizures. We had no idea what the problem was. His brain scans were good. His pediatrician told me “oh, all 8 year olds faint now and then”,...
by kymera_editor | Mar 8, 2019 | Long QT Syndrome, SADS Spotlight
Name: Danielle and Alanna Mundondo Age: 34 and 4 Which SADS condition do you have? Long QT Syndrome Type 2 When were you diagnosed? Age 19 via abnormal ECG and genetic testing for Danielle. At birth via cord blood genetic testing for Alanna. How are you...
by kymera_editor | Feb 21, 2019 | Long QT Syndrome, SADS Spotlight
Name: WaylonAge: 10 monthsWhich SADS condition do you have? Long QT Type 1 When were you diagnosed? 4 months old How are you treated? Beta blocker How/when were you diagnosed? When I was born, they found an unusual arrhythmia on my EKG after they noticed it when...
