Get Involved in Research
Research Studies and Clinical Trials
Families living with cardiac channelopathies and cardiomyopathies deserve better treatments and clearer answers. That’s why Accelerating Research is one of our five core programs. We work with healthcare professionals, researchers, companies creating new treatments, and regulatory agencies like the CDC and FDA to accelerate rare heart research – always keeping the cause in mind: a patient, a family, and a future filled with possibility.
By providing that critical link between the patient community and the researchers and organizations who are working hard to make a difference in future diagnosis and treatment, we are committed to helping families live longer, live better – and even find a cure.
If you are interested in research opportunities and you haven’t already filled out our Research Survey, you can do so below. Our Research Survey helps us learn more about our community – plus, connect you to future research opportunities.
Types of Enrolling Research
- Research studies (including natural history studies) help doctors and scientists learn more about diseases and how they affect people. They don’t require taking any new medicine.
- Clinical trials test new medicines or treatments in volunteers to see if they are safe and work well.
- Gene therapy is a special treatment that tries to fix or replace a “broken” gene to help the body work better. Gene therapies are not yet commercially available for genetic heart rhythm conditions, though some are in clinical trials.
Have you been diagnosed with a cardiac channelopathy or cardiomyopathy? Below, learn more about currently enrolling research you can participate in to help find better treatments – and ultimately a cure – for genetic heart rhythm conditions.
We use this page to collaborate with academic and industry partners who are enrolling those with rare heart conditions for research and clinical studies. Please note that some of these partners may have paid to have their information posted below. This support does not imply recommendation or favor of our Foundation, as we don’t endorse any particular study.
