Get Involved in Research
Research Studies and Clinical Trials
This is an exciting time for those with SADS conditions because there is so much new research happening and a greater push for new therapies! You may be wondering what this means for you and your family, how you can be involved, and how you decide what research opportunities or clinical trials are right for you.
Get answers to the most common questions about participating in research and view a list of studies currently seeking participants.
If you are interested in research opportunities and you haven’t already filled out our Research Survey, please click here.
Research Studies
Research studies look at new and better ways to understand, detect, control and treat health conditions. There are many different types of research
Clinical Trials
Clinical trials are conducted to make sure new drugs, gene therapies, ICDs etc. are safe and effective before they can be approved by the FDA. There are many different phases in clinical trials, and each phase can take several years to complete. This means there will be LOTS of opportunities to participate in clinical trials – both now and in the future.
SADS isn’t affiliated with any particular company or trial, which means that we can act as an unbiased source of information for you and help answer questions or concerns to the best of our ability!
