by kymera_editor | Sep 13, 2019 | Advocacy, AEDs, Conference, CPR, SADS Spotlight, Schools, Sports/Exercise, Sudden Cardiac Arrest
Name: Richard LamphierLocation: Atlanta, GA Occupation: Program Manager Project S.A.V.E of Children’s Healthcare of Atlanta, an affiliate of Project ADAM Why were you drawn to nursing as a career? I had a good friend who passed away. While he was...
by kymera_editor | Sep 4, 2019 | AEDs, Awareness, Connecting with others, Long QT Syndrome, SADS Spotlight, Sports/Exercise
Name: Olivia KenworthyAge: 12Which SADS condition do you have? Long QT Syndrome When were you diagnosed? 2 yrs oldHow are you treated? Beta Blocker How/when were you diagnosed?An aunt “passed out” at work doing jumping jacks. She...
by kymera_editor | Jul 1, 2019 | Camp, Long QT Syndrome, SADS Spotlight, Sports/Exercise
Name: CJ HeilAge: 20Which SADS condition do you have? Long QT SyndromeWhen were you diagnosed? Oct. 2010How are you treated? Beta Blocker (Nadolol) What has been the biggest challenge you’ve faced in living with your diagnosis? Knowing that even though it’s not...
by kymera_editor | Jun 21, 2019 | Long QT Syndrome, Research, Sports/Exercise
Calling LIVE-LQTS Research Study Participants! If you are enrolled in the LIVE-LQTS study, we would love to hear from you and thank you for participating. SADS Foundation is creating a web page to recognize members involved in this three-year study. We...
by kymera_editor | Apr 23, 2019 | AEDs, Long QT Syndrome, Sports/Exercise, Support Groups
If you can’t fly. Run.If you can’t run. Walk. If you can’t walk. Crawl.But by all means keep moving. ~Martin Luther King Jr. Nothing about a new diagnosis is easy. There are so many questions, so many fears, so many life changes that happen. When our...
by kymera_editor | Sep 1, 2018 | ARVC, Sports/Exercise
Some positives & observations of now being a walker & not a runner: 1. When it’s 4:30 in the morning I don’t even know cause I’m still sleeping; 2. I don’t have to experience being 20 miles into a marathon feeling like hell & say, shoot, I still got...
