by kymera_editor | Sep 1, 2018 | ARVC, Sports/Exercise
Some positives & observations of now being a walker & not a runner: 1. When it’s 4:30 in the morning I don’t even know cause I’m still sleeping; 2. I don’t have to experience being 20 miles into a marathon feeling like hell & say, shoot, I still got...
by kymera_editor | Aug 27, 2018 | Parenting, Schools
Being “sidelined” from chronic medical condition symptoms can be both overwhelming and depressing. Though the comfort zone of home will inevitably lure us from school toward the “path of least resistance” on those rough days, unfortunately, the more you miss school,...
by kymera_editor | Jul 8, 2018 | ICD, Pacemaker
Editor’s Note: This post is also on HCM Beat, a great resource for topics related to Hypertrophic Cardiomyopathy. When cardiac patients receive a pacemaker or defibrillator, they often have questions about their new “friend.” They wonder if this new device...
by kymera_editor | Jun 30, 2018 | Sudden Cardiac Arrest
So, you’ve had a sudden cardiac arrest. For you and many of us, this marks the beginning of long-term medical interventions and therapies designed to diagnose and treat the underlying cause or causes of this traumatic heart-stopping event. But while the family...
by kymera_editor | Jun 29, 2018 | Long QT Syndrome
Shannon Cron, 38, has Long QT Syndrome Type 2. She was diagnosed in 2017. She is treated with a beta blocker. How/when were you diagnosed? I was diagnosed after the death of my 14 year old daughter in August 2016 who was the first in the family to be...
