by kymera_editor | Nov 8, 2018 | Advocacy, Grief and Loss, Sudden Cardiac Arrest
When you’re six years old, the world is your oyster and your imagination is taller than you are. Nothing bad could ever happen because the toxic realities of life far surpasses our level of comprehension at such a young age. I always found comfort in the...
by kymera_editor | Oct 9, 2018 | Announcements, ICD, Long QT Syndrome
When we heard the 2017 SADS Conference was going to be held in Canada, it seemed like a sign for my mom and me as Canadians. In the past, we had not been able to get insurance to travel outside of the country after her sudden cardiac arrest 5 years prior. Since it was...
by kymera_editor | Oct 1, 2018 | Announcements, Awards
Say THANKS to Dr. Ackerman! Support the life-saving services of the SADS Foundation! We will be announcing this SURPRISE on October 27th at the 11th Annual International SADS Foundation Conference in Ann Arbor, Michigan. Join us in showing Dr. Ackerman our heartfelt...
by kymera_editor | Sep 17, 2018 | Brugada Syndrome, ICD, Long QT Syndrome, Support Groups
Bridget McGaughey, 37, has Long QT Syndrome and Brugada Syndrome. She was diagnosed in 2012 at age 32. Her treatment is an ICD. How/when were you diagnosed? I was diagnosed after a syncope episode in 2012. I did a face plant (ouch) in a parking garage after walking...
by kymera_editor | Sep 14, 2018 | Announcements
In the summer of 2009, I was a recent graduate from art school, a waitress in a pub, and an intern at a museum. Life was full of promise and possibility and the usual anxieties associated with being a young person trying to find their place in this world....