by kymera_editor | May 15, 2017 | Long QT Syndrome
My experience with Long QT Syndrome began at about age 7, or at least I think it did. One of the funny things about this condition is you don’t know for sure if it caused you to lose consciousness if you don’t have an EKG or some other kind of heart monitor hooked up...
by kymera_editor | May 12, 2017 | Uncategorized
Are you a patient affected by a SADS Condition? Are you a parent or sibling or other family member of someone affected by a SADS condition? Are you a doctor, genetic counselor, researcher, or other professional who would like to help contribute to a resource for SADS...
by kymera_editor | Apr 29, 2017 | CPVT, Uncategorized
If you haven’t already I want you to take a look at that photo. It’s special. Not because of what’s there, but because of what isn’t. Honestly this is a once in a lifetime photo, because the event in this photo changed my life forever. Have you...
by kymera_editor | Mar 8, 2017 | CPVT
The other day, while watching a wheelchair basketball game, my friend was talking about how one of the players ended up paralyzed. When she finished telling the story she said “I don’t know what I would do in that situation. Would I keep going or just give...
by kymera_editor | Feb 1, 2017 | Uncategorized
I had a patient in the emergency department present with anaphylaxis to a bee sting. She thankfully, had her own epi pen with her and had been anticipating this moment for over a decade after discovering her allergy to bees. But what she said was interesting. She got...
