by SADS Foundation | Jul 8, 2025 | Blog
With this blog, I want to begin something that has lived inside me for a long time. I’m sharing the story of our daughter Liv because I feel it deserves to be told. Not just to raise awareness for a rare condition like LQTS, but also to show how much love, hope, and...
by SADS Foundation | Jul 8, 2025 | Blog
Brandon had six “fainting” episodes before the age of ten before he learned that he has Long QT Syndrome, a condition that affects the heart’s rhythm – and that it runs in his family. Today, Brandon is returning to college to learn engineering so he can work on...
by SADS Foundation | Jul 1, 2025 | Blog
In the fall of 2013, Steve and his wife traded swim practice drop-off and pick-up duty for long nights under the glaring fluorescent lights of a pediatric CVICU. Kate, their 15-year-old daughter, had just been hospitalized for a syncopal (fainting) episode during a...
by SADS Foundation | Jul 1, 2025 | Blog
The SADS Foundation encourages families to take a medical history of their immediate and extended family. What follows is a prime example of why. Patrei, a mother of three, didn’t know Long QT ran in her family until 2020, but her aunt Heidi was diagnosed in 1990. How...
by SADS Foundation | Jun 23, 2025 | Blog
by Danielle Mundondo  It’s been over five years since I last wrote. That piece was called Holding My Breath. Today, I come to you with its natural follow-up: Letting Go. Alanna is doing well—thankfully, she hasn’t experienced any cardiac events that we’re aware...
