by kymera_editor | Apr 4, 2022 | Awareness, Long QT Syndrome, Parenting
When I was 14, I starting blacking out and have seizure-like activity, and we saw different specialists, but they couldn’t figure out what was causing the seizures. They did a bunch of different tests – MRIs and CAT scans – which all came back normal. Because of my...
by kymera_editor | Mar 25, 2022 | Awareness, Fundraising, Grief and Loss, Long QT Syndrome, Parenting
“We celebrate Graeme every day in our family by persevering and sticking together, against all odds.” Deby’s Story I was 28 when I was diagnosed with LQTS in 1989. In 2000, we learned from my Electrophysiologist, Dr. Blair Halperin that we could do genetic testing for...
by kymera_editor | Mar 2, 2022 | Awareness, Fundraising, Grief and Loss, Long QT Syndrome, Raising Awareness, Raising Funds
Lyla, Sonny Jude’s sister, at the pancake breakfast My son, Sonny Jude, went unresponsive (stopped breathing and his precious heart stopped beating) at six months old. His babysitter saw this and performed CPR and resuscitated him. It was then we...
by kymera_editor | Feb 18, 2022 | Awareness, Long QT Syndrome, Parenting
The first time I fainted, I was a freshman in high school. I got up early to go pack boxes in the food kitchen, and I hadn’t eaten breakfast, and all of the sudden the world went black. I came to right away – everyone thought I was just hypoglycemic, so I didn’t go to...
by kymera_editor | Dec 14, 2021 | Awareness, ICD, Long QT Syndrome, SADS Spotlight
Can you tell me a little bit about your SADS journey? I was diagnosed with Long QT when I was eight years old, and was able to get genetic testing as an adult to identify that I have multiple LQTS Type 2 mutations. As a child in the ‘90s, the doctors knew very little...
by kymera_editor | Oct 12, 2021 | Awareness, CPR, CPVT, SCA Awareness, Sudden Cardiac Arrest
Can you tell me a little bit about your CPR save? It’s one of those things that happens in the career of a paramedic and that will stick with you for life. I’ve seen a lot and I’ve done a lot, but responding to Gregory’s house is something that...
