Frances’ ARVC Story

by Frances S. In the spring of 2025, I went for my yearly physical and it was discovered via EKG that I was having a decent amount of premature ventricular contractions or PVCS. After a thorough health history, which included some anecdotes of my past as a very active...

In Memory of Adam Wilkens

In 2019, Amy lost her husband, Adam, to undiagnosed Brugada Syndrome – leaving family, friends and their two young boys, who were just three and six years old at the time. Amy now serves on the Brugada Syndrome Steering Committee at the SADS Foundation to help other...

Meet Our CEO Walker Frahm

Do you have a personal connection to the SADS Foundation? In 2022, our daughter Lavinia—Lovey—passed away as the result of an undiagnosed cardiac event. While we may never know exactly what happened, we do know how deeply painful it is to lose a child without answers....