Abby’s Brugada and WPW Story

Can you tell me a little bit about your journey – from diagnosis to where you are now?  It started with stomach issues which led me to the ER, and they did an EKG there. And that’s when all this started because they saw type one Brugada pattern.  I didn’t...

LQTS Awareness: David’s Story

Can you tell me about your SADS journey- from diagnosis to where you are now? I’m originally from Guam. Moved to the states with my mom & dad when I was 8 years old. When I was six years old, my mom and I were on our way to a fiesta party. I was in the...

CPVT Awareness: Madalyn’s Story

On December 21, 2022 I was playing tag with my sisters and neighbors when I collapsed in my neighbor’s yard. Thankfully my friends ran for help after my youngest sister found me unresponsive and blue in the face. 911 was called and I was taken to the hospital where I...

CPR and AED Awareness: Matt’s Story

Matt Clark is alive today because of the quick actions of his coworkers – at 40,000 feet in the air. Matt, who was an airline pilot at the time, had no previous medical issues or symptoms of a heart condition before his Sudden Cardiac Arrest (SCA) in 2020. “There was...

Living with ARVC | Julia’s Story

Julia | Living with ARVC       Santa Rosa, CA | Born January 1992 “This is something I’ve had to deal with every single day for more than two years. I have had to mitigate. Life has really had to change. I came out of this a completely different person.” The Sonoma...

ARVC Awareness: Katherine’s Story

“This whole experience completely changed my perspective on life. I think now I am easier on myself, I lean on the people I love a little more, and I don’t stress about the trivial things anymore. I take it one day at a time, although living with ARVC is hard.”...