by Erinsads | Jun 5, 2023 | Blog
On December 21, 2022 I was playing tag with my sisters and neighbors when I collapsed in my neighbor’s yard. Thankfully my friends ran for help after my youngest sister found me unresponsive and blue in the face. 911 was called and I was taken to the hospital where I...
by Erinsads | Jun 5, 2023 | Blog
Matt Clark is alive today because of the quick actions of his coworkers – at 40,000 feet in the air. Matt, who was an airline pilot at the time, had no previous medical issues or symptoms of a heart condition before his Sudden Cardiac Arrest (SCA) in 2020. “There was...
by Erinsads | May 21, 2023 | Blog
Julia | Living with ARVC Santa Rosa, CA | Born January 1992 “This is something I’ve had to deal with every single day for more than two years. I have had to mitigate. Life has really had to change. I came out of this a completely different person.” The Sonoma...
by Erinsads | May 16, 2023 | Blog
“This whole experience completely changed my perspective on life. I think now I am easier on myself, I lean on the people I love a little more, and I don’t stress about the trivial things anymore. I take it one day at a time, although living with ARVC is hard.”...
by Erinsads | May 15, 2023 | Blog
In June 2023, the SADS Foundation is bringing the ARVC patient community together for a first ever FDA Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD). This meeting gives the FDA and other key stakeholders — including researchers, biopharma...
by Erinsads | May 10, 2023 | Blog
I’ve known about my Long QT type 1 diagnosis for as long as I can remember. My mom, only after having my first sibling, Calvin, prematurely and running extra health tests, found out our genetic line had it. She then passed down the trait to her next two children,...
