by Erinsads | Jan 5, 2023 | Blog
Can you tell me a little bit about your SADS journey? I had passed out a few times as a teen. When I was 18, I had been home alone, sick all week. I went into school for the day that week and was walking up the stairs. I remember seeing dots and being told that I had ...
by Erinsads | Dec 28, 2022 | Blog
In October, the SADS Foundation held an opportunity drawing for an AED, which was generously donated by American AED, part of the One Beat Medical & Training Family. This drawing raised over $2,600 for us here at SADS – thanks to everyone who entered! Learn more...
by Erinsads | Dec 9, 2022 | Blog
In 2016, Babett’s daughter, Joriale, passed away from LQTS. This year, her book about her family’s journey was published – helping Babett spread awareness in honor of her daughter. In January of 2016, my daughter, Joriale, passed away from Long QT Syndrome. Nine...
by Erinsads | Nov 16, 2022 | Blog
Genevie’s children have LQTS, which was only discovered through genetic testing. Her youngest daughter had more severe symptoms of LQTS, and went through an extensive testing panel – which is how her husband learned he had LQTS Type 5. Sometimes you can’t tell...
by Erinsads | Nov 16, 2022 | Blog
Family Health History Month is a national initiative that encourages families to share their medical history with relatives who may also be affected. We’re spotlighting stories of families for whom genetic testing, and talking about family health history, was...
by Erinsads | Nov 16, 2022 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? In 1991, I was a single dad living in Houston. I was a minister with a great church, a daughter at Baylor University, a 15-year-old son and his 13-year-old brother. My...
