by Erinsads | Jan 6, 2023 | Blog
Can you tell me a little bit about your SADS journey? My oldest daughter Madeline and I are both affected by ARVC. We’re a very active family and have always been involved in sports. Maddie was in soccer, basketball, gymnastics and dance. Very competitive, very...
by Erinsads | Jan 6, 2023 | Blog
Can you tell me a little bit about your SADS journey? I’ve always fainted for no reason, maybe once or twice a year. It was either unprovoked or something simple such as tripping, getting hurt, or even being stung by a bee and I would faint. Growing up, there...
by Erinsads | Jan 5, 2023 | Blog
Can you tell me a little bit about your SADS journey? I had passed out a few times as a teen. When I was 18, I had been home alone, sick all week. I went into school for the day that week and was walking up the stairs. I remember seeing dots and being told that I had ...
by Erinsads | Dec 28, 2022 | Blog
In October, the SADS Foundation held an opportunity drawing for an AED, which was generously donated by American AED, part of the One Beat Medical & Training Family. This drawing raised over $2,600 for us here at SADS – thanks to everyone who entered! Learn more...
by Erinsads | Dec 9, 2022 | Blog
In 2016, Babett’s daughter, Joriale, passed away from LQTS. This year, her book about her family’s journey was published – helping Babett spread awareness in honor of her daughter. In January of 2016, my daughter, Joriale, passed away from Long QT Syndrome. Nine...
by Erinsads | Nov 16, 2022 | Blog
Genevie’s children have LQTS, which was only discovered through genetic testing. Her youngest daughter had more severe symptoms of LQTS, and went through an extensive testing panel – which is how her husband learned he had LQTS Type 5. Sometimes you can’t tell...
