ARVC Awareness: Adam’s Story

Can you tell me a little bit about your family’s ARVC story? The first time our family heard of ARVC was in 2018 when my son, Greg – after the first of five Sudden Cardiac Arrests he’d experience in his lifetime – received the diagnosis. Seventeen years earlier, my...

Kiersten’s Story: Making a Difference

Can you tell me a little bit about your SADS journey? I’m a junior in high school. I used to be figure skater until I was diagnosed with ARVC, and that’s how I found out that I had it – I was skating when I had some arrhythmias. After a long process of being...

ICD Stories: Katie Wildhagen

Can you tell me a little bit about your SADS journey? In the spring of 2000, I went into sudden cardiac arrest. After about four weeks of testing, they finally realized I had Long QT Syndrome. I went for six months without a device. My mom really advocated for me, and...

Mona: My Journey with LQTS and Cancer

In 2003 I was a very physically fit female Firefighter/Paramedic who was running full Marathons. I was 35 years old, a 14-year veteran of the Fire Service with not one event that would indicate I had any cardiac issue at all. Then, after a routine physical conducted...

Celebrating our SADS Moms

This Mother’s Day, we want to give a huge shoutout to all of our SADS moms! Whether you have a SADS condition, or are caring for a child with a cardiac arrhythmia, we want to thank you for being the heart of our families.  Being a mom in a SADS family comes with...

Keona: In Memory of Elijah and Chloe

Can you tell me a little bit about your family’s SADS journey? I have one surviving daughter, who is 14 and has Long QT Syndrome. In my family, we have an aunt with Long QT Syndrome – who is the only reason that I ever knew my son had it, which led to me knowing I had...