One Long QT Journey

By: Jett H. My experience with Long QT Syndrome began at about age 7, or at least I think it did. One of the funny things about this condition is you don’t know for sure if it caused you to lose consciousness if you don’t have an EKG or some other kind of heart...

CPVT Awareness: The Osterhout Family Story

The year 1987 brought an unexpected tragedy to the Osterhout family when their son Matt, age 17, died suddenly. As part of his regular routine, Matt had jogged from his home to work. However, minutes later he was gone. Matt’s autopsy did not reveal an explanation, but...

Against All Odds: Melanie’s LQTS Story

Jeff Stichler anxiously watched as emergency room doctors feverishly worked to get a steady heartbeat on his wife on Oct. 17, 2008. Even after numerous electric shocks to her chest, Melanie Stichler remained in a vegetative state and no one knew what caused her to...