by SADS Foundation | Sep 10, 2025 | Blog
In 2019, Amy lost her husband, Adam, to undiagnosed Brugada Syndrome – leaving family, friends and their two young boys, who were just three and six years old at the time. Amy now serves on the Brugada Syndrome Steering Committee at the SADS Foundation to help other...
by SADS Foundation | Aug 20, 2025 | Blog
At just 16 years old, Pennsylvania high school student Francesca is a rare heart condition advocate. She’s independently partnering with mega jewelry store, Kendra Scott, to raise awareness and funds for the SADS Foundation. “I love their jewelry and how it makes me...
by SADS Foundation | Jul 28, 2025 | Blog
Ryan Weidler’s ideal summer day would have included sports, especially basketball, golf, baseball, and outdoor fun and laughter with family and friends. That’s why, twenty years ago, following Ryan’s sudden and unexpected death, his family made the passionate decision...
by SADS Foundation | Jul 10, 2025 | Blog
Do you have a personal connection to the SADS Foundation? In 2022, our daughter Lavinia—Lovey—passed away as the result of an undiagnosed cardiac event. While we may never know exactly what happened, we do know how deeply painful it is to lose a child without answers....
by SADS Foundation | Jul 8, 2025 | Blog
With this blog, I want to begin something that has lived inside me for a long time. I’m sharing the story of our daughter Liv because I feel it deserves to be told. Not just to raise awareness for a rare condition like LQTS, but also to show how much love, hope, and...
by SADS Foundation | Jul 8, 2025 | Blog
Brandon had six “fainting” episodes before the age of ten before he learned that he has Long QT Syndrome, a condition that affects the heart’s rhythm – and that it runs in his family. Today, Brandon is returning to college to learn engineering so he can work on...
