Martin’s LQTS Story

Martin – also known as Fast Heart Mart – was diagnosed with Long QT Syndrome (LQTS) at the age of 17 after six years of searching for answers. Now, he’s a professional musician who wants others with LQTS to know that this genetic diagnosis “doesn’t mean the end” – and...

Katherine’s SCA & HCM Story

Katherine could tell that something was wrong with her heart – but doctors kept telling her that she was a perfectly healthy eighth grader. After experiencing Sudden Cardiac Arrest (SCA) in a CrossFit parking lot, Katherine is sharing her story to spread awareness –...

Preparing for Your Surgery

Preparing for Your Surgery If you have a SADS condition, you may be looking at having several types of surgeries for your heart. Below, you’ll find a guide to preparing for your heart surgery, and what each surgery entails. General Tips: Preparing for a Surgery...

Erin’s ARVC Awareness Story

I have always been an active person, particularly when it comes to exploring nature. Throughout my 20s, I was often backpacking, hiking, or going on long bike rides. I first realized something was wrong when I began fainting while running. I couldn’t figure out...

Summer’s SCA Survival Story

In May of 2022, Summer went into Sudden Cardiac Arrest (SCA) on her front porch. Thanks to her husband’s quick actions, she survived. After her diagnosis of Long QT Syndrome (LQTS) Type 1, Summer is on a mission to spread awareness about CPR – and “invisible”...