Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
SADS Spotlight: Danielle and Alanna
Name: Danielle and Alanna Mundondo Age: 34 and 4 Which SADS condition do you have? Long QT Syndrome Type 2 When were you diagnosed? Age 19 via...
Selfies With AEDs
Do you notice AEDs in your community? If you’re at work, out shopping, working out or participating in your everyday activities - could you find the...
“I Had To Do Something”: An Interview with Rare Disease Advocate Courtney Waller
February 28th is Rare Disease Day. The main objective is to raise awareness amongst the general public and decision-makers about rare diseases and...
Heart Hero: Terry
Terry Bishop was nominated as a Heart Hero by his wife, Whitney. He lives with Brugada Syndrome....
SADS Spotlight: Waylon
Name: WaylonAge: 10 monthsWhich SADS condition do you have? Long QT Type 1 When were you diagnosed? 4 months old How are you treated? Beta blocker...
SADS Spotlight: Tasha
Name: Tasha Kempton Age: 43 Which SADS condition do you have? LQT2 When were you diagnosed? 1992 How are you treated? Beta Blocker & ICD...
SADS Spotlight: Dawn
Name: Dawn BarnettAge: 71Which SADS condition do you have? Long Qt Syndrome 11When were you diagnosed? 2005How are you treated? beta blocker,...
SADS Spotlight: Daiana
Name: Daiana Age: 21Which SADS Condition do you have? Long QT Syndrome When were you diagnosed? Age 17 How are you treated? Beta...
SADS Spotlight: Stephanie
Stephanie and her husband on a recent night out at the theater Name: Stephanie Swor Festian Age: 45 Which SADS condition do you have?...
SADS Spotlight: Lauren and Avery
Lauren and Avery Hannah Ages: 38 and 7 Condition: Long QT Syndrome Type 1, I was diagnosed at 13, Avery was diagnosed at birth. Treatment: We are...
My Heart: The Fragile Flower
Read Kennedy’s previous post for the first installment of her story. January 23rd. Some recognize this date as the day Richard Nixon announced an...
A Place for You
Back in 2016, I came across this special camp for kids with heart disease called Camp Taylor in Modesto, California. You see, I was in the midst of...