Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
SADS Spotlight: Waylon
Name: WaylonAge: 10 monthsWhich SADS condition do you have? Long QT Type 1 When were you diagnosed? 4 months old How are you treated? Beta blocker...
SADS Spotlight: Tasha
Name: Tasha Kempton Age: 43 Which SADS condition do you have? LQT2 When were you diagnosed? 1992 How are you treated? Beta Blocker & ICD...
SADS Spotlight: Dawn
Name: Dawn BarnettAge: 71Which SADS condition do you have? Long Qt Syndrome 11When were you diagnosed? 2005How are you treated? beta blocker,...
SADS Spotlight: Daiana
Name: Daiana Age: 21Which SADS Condition do you have? Long QT Syndrome When were you diagnosed? Age 17 How are you treated? Beta...
SADS Spotlight: Stephanie
Stephanie and her husband on a recent night out at the theater Name: Stephanie Swor Festian Age: 45 Which SADS condition do you have?...
SADS Spotlight: Lauren and Avery
Lauren and Avery Hannah Ages: 38 and 7 Condition: Long QT Syndrome Type 1, I was diagnosed at 13, Avery was diagnosed at birth. Treatment: We are...
My Heart: The Fragile Flower
Read Kennedy’s previous post for the first installment of her story. January 23rd. Some recognize this date as the day Richard Nixon announced an...
A Place for You
Back in 2016, I came across this special camp for kids with heart disease called Camp Taylor in Modesto, California. You see, I was in the midst of...
Day By Day: Learning to Live with LQTS
I have a life threatening heart condition called Long QT Syndrome (LQTS). I have an implantable cardioverter-defibrillator (ICD), a small...
Fragments of Hope
Mama’s house is gone Fragments remain as part of That once vital family I am one of those fragments My name is Mary I have a story to tell...
Silent Killer
When you're six years old, the world is your oyster and your imagination is taller than you are. Nothing bad could ever happen because the toxic...
How the SADS Conference Changed My Life (& My Treatment Plan)
When we heard the 2017 SADS Conference was going to be held in Canada, it seemed like a sign for my mom and me as Canadians. In the past, we had not...