by kymera_editor | Apr 20, 2020 | CPVT, ICD, Parenting, SADS Spotlight, Sudden Cardiac Arrest
Name: Danielle Age: 38 Which SADS condition do you have? CPVT When were you diagnosed? Oct 2017, after 20 + yrs of misdiagnosis How are you treated? (Beta blocker, ICD, etc.) ICD placed in November 2017, nadolol and flecanide How/when were you diagnosed? I had a...
by kymera_editor | Feb 18, 2020 | AEDs, CPVT, Genetic Testing, SADS Spotlight, Sports/Exercise
Bella getting ready to tumble with a heart monitor. GO BELLA! Name: Bella AlvarezAge: 11Which SADS condition do you have? CPVTWhen were you diagnosed? December 2018How are you treated? Beta Blocker (Metoprolol) How/when were you diagnosed? I was diagnosed through...
by kymera_editor | Nov 5, 2019 | CPVT, LCSD, Managing Multiple Diagnoses, Sports/Exercise
Hi! My name is Holly Mulder. I am 29 years old and I have CPVT. I live in Charlotte, NC with my husband and English Bulldog, Oliver. Oliver When I was 22, I started training for my first triathlon. A few years later, I had completed over 20 short...
by kymera_editor | Oct 29, 2019 | Awareness, CPVT, SADS Spotlight, Sudden Cardiac Arrest
Name: Christian “Cole” InmanAge: 14When was your SCA? May 13, 2016/Sept 17, 2018Which SADS condition do you have? CPVTHow are you treated? Nadolol x2 daily, flecainide x2 daily Can you tell us about your SCA? 1st time I was on a fair ride called the...
by kymera_editor | Jun 20, 2019 | CPVT, ICD, SADS Spotlight, Sudden Cardiac Arrest
Name: Joseph “Joey” ReinelAge: 4 Which SADS condition do you have? CPVTWhen were you diagnosed? Age 3 – after surviving a SCAHow are you treated? Medicine – beta blocker (propranolol) and anti-arrhythmia (amiodarone) and an ICD implanted Aug 2018How/when...
by kymera_editor | Mar 22, 2019 | CPVT, SADS Spotlight
Alison and her husband after competing in the 2018 USAT Duathlon National Championship! Name: Alison HegeAge: 30Which SADS condition do you have? CPVTWhen were you diagnosed? May 2016 How are you treated? 60mg Nadalol daily, Left cardiac sympathetic denervation...
