by kymera_editor | Feb 19, 2019 | Long QT Syndrome, SADS Spotlight
Name: Tasha Kempton Age: 43 Which SADS condition do you have? LQT2 When were you diagnosed? 1992 How are you treated? Beta Blocker & ICD How/when were you diagnosed?I was diagnosed with Long QT in 1992. My cousin Josh Sergio, passed away in his sleep on October...
by kymera_editor | Feb 15, 2019 | Long QT Syndrome, SADS Spotlight
Name: Dawn BarnettAge: 71Which SADS condition do you have? Long Qt Syndrome 11When were you diagnosed? 2005How are you treated? beta blocker, ICD How/when were you diagnosed? 2005 after heart arrest and medically-induced coma for 7 days. Identical twin...
by kymera_editor | Feb 8, 2019 | Long QT Syndrome, SADS Spotlight
Name: Daiana Age: 21Which SADS Condition do you have? Long QT Syndrome When were you diagnosed? Age 17 How are you treated? Beta blockers How/when were you diagnosed? I was diagnosed when I was 17 years old. What has been the biggest...
by kymera_editor | Feb 5, 2019 | ICD, Long QT Syndrome, SADS Spotlight
Stephanie and her husband on a recent night out at the theater Name: Stephanie Swor Festian Age: 45 Which SADS condition do you have? Long Q-T Type 1 How are you treated? (Beta blocker, ICD, etc.) Beta blocked from 1992-2015, now beta plus ICD When were...
by kymera_editor | Jan 9, 2019 | Long QT Syndrome, SADS Spotlight
Lauren and Avery Hannah Ages: 38 and 7 Condition: Long QT Syndrome Type 1, I was diagnosed at 13, Avery was diagnosed at birth. Treatment: We are both treated with Nadolol. I was diagnosed by EKG after my brother had a fainting episode while playing basketball. I...
by kymera_editor | Dec 20, 2018 | Camp, Connecting with others, CPVT, ICD, Long QT Syndrome
Back in 2016, I came across this special camp for kids with heart disease called Camp Taylor in Modesto, California. You see, I was in the midst of trying to digest the fact that my daughter had this thing called Long QT Syndrome and CPVT (yep—both) and that she had...
