From Cycling to Dog Agility: Kathy’s ARVC Journey

For many years before her diagnosis, Kathy’s heart beat in a strange rhythm – but she always chalked it up to being a competitive athlete. After being diagnosed with ARVC (arrhythmogenic right ventricular cardiomyopathy), Kathy switched from cycling to training her...

#ThisisACM: Cassidy’s ACM Story

At just seventeen years old, Cassidy – a competitive athlete – was diagnosed with ACM (arrhythmogenic cardiomyopathy). She experienced her first symptoms at the age of twenty, and is joining the SADS Foundation ARVC Steering Committee to help make a difference for...

ARVC Awareness: Matthew’s Story

In October of 2022, Matthew was taking a dinner break during a World of Dance rehearsal in New York City when he experienced Sudden Cardiac Arrest (SCA). It was his first symptom of an underlying heart condition. A friend started CPR, and Matthew was shocked twice...

“I Have Hope For My Daughter” | Melanie’s ARVC Story

Melanie was diagnosed with ARVC (Arrhythmogenic Right Ventricular Cardiomyopathy) after experiencing ventricular tachycardia – a fast, irregular, and dangerous heart rhythm – in 2021. But that was just the beginning of Melanie’s heart journey. Melanie experienced...