by Erinsads | Jan 19, 2024 | Blog
For many years before her diagnosis, Kathy’s heart beat in a strange rhythm – but she always chalked it up to being a competitive athlete. After being diagnosed with ARVC (arrhythmogenic right ventricular cardiomyopathy), Kathy switched from cycling to training her...
by Erinsads | Jan 18, 2024 | Blog
At just seventeen years old, Cassidy – a competitive athlete – was diagnosed with ACM (arrhythmogenic cardiomyopathy). She experienced her first symptoms at the age of twenty, and is joining the SADS Foundation ARVC Steering Committee to help make a difference for...
by Erinsads | Nov 27, 2023 | Blog
In 2016, Alesha started experiencing symptoms like severe nausea and syncope (fainting) – but didn’t know what could be causing them. That August, she went to the hospital for an unrelated medical procedure. She was woken up from anesthesia by her doctor, who asked,...
by Erinsads | Sep 20, 2023 | Blog
In October of 2022, Matthew was taking a dinner break during a World of Dance rehearsal in New York City when he experienced Sudden Cardiac Arrest (SCA). It was his first symptom of an underlying heart condition. A friend started CPR, and Matthew was shocked twice...
by Erinsads | Sep 18, 2023 | Blog
Melanie was diagnosed with ARVC (Arrhythmogenic Right Ventricular Cardiomyopathy) after experiencing ventricular tachycardia – a fast, irregular, and dangerous heart rhythm – in 2021. But that was just the beginning of Melanie’s heart journey. Melanie experienced...