Paul’s ARVC Story

In October 2014, Paul was at the gym when he suddenly collapsed. His doctors thought the cause was dehydration or stress – until he collapsed again while running just six months later. Paul was originally diagnosed with CPVT after a panel of heart tests –...

Underneath

by Kiersten Rock-Torcivia Who is this girl? What is on her chest? On her chest, just below her left collarbone, is a black oval outline shadowed with gray. Slashing diagonally through the upper part of the shape sits a vibrant raw pink scar. From the upper part of the...

Lauren’s ARVC Story

Nine months ago, on March 14, 2024 (National Pi Day, to be exact), something happened to me that didn’t make sense No matter how many highly trained, world-renowned doctors at the Cleveland Clinic diagnosed and treated me, they still can’t explain exactly why what...

Mental Health and ARVC

Written by Kiersten Rock-Torcivia   “Mental health isn’t static; just like anything in life, there are highs and lows.” Mental Health. It’s a hot topic these days, on the tip of everyone’s tongue. But what does it look like when it comes to...

Erin’s ARVC Awareness Story

I have always been an active person, particularly when it comes to exploring nature. Throughout my 20s, I was often backpacking, hiking, or going on long bike rides. I first realized something was wrong when I began fainting while running. I couldn’t figure out...