by Erinsads | Apr 25, 2023 | Blog
Nelson | Living with ARVC Tampa, FL | Born August 1971 “The problem is not dying. The problem is living with this damn disease.” The loud banging coming from the street was getting closer. Rounds of gunshots, RPG explosions, and the sounds of mass looting came...
by Erinsads | Mar 16, 2023 | Blog
Rachel | Living with ARVC Phoenix, Arizona | Born January 1987 “I am forcing myself to take it easy—which is not easy.” Rachel grabs her tennis racket and heads onto the court. She savors the cool spring air,...
by Erinsads | Mar 3, 2023 | Blog
Can you tell me a little bit about your SADS journey? I’ve always been very healthy and athletic, always involved in running or walking. When I was young, I ran track, cross country and participated in a lot of 5K’s and a few Tough Mudders as well as a half...
by Erinsads | Feb 9, 2023 | Blog
Did you know that one important part of keeping your heart healthy this National Heart Month is by learning more about what’s in your genes? Take it from Julia – who was diagnosed in 2020 with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC), a genetic disease...
by Erinsads | Feb 8, 2023 | Blog
In November 2022, we asked people to share their stories as they took our genetic testing survey – and we are so grateful for everyone who talked with us, wrote down their story, or left us a voicemail! Here are some of the stories shared by the SADS community....
