by Erinsads | Jan 30, 2023 | Blog
Jason | Living with ARVC West Newbury, Massachusetts | Born July 1984 “I used to hike three or four peaks in a day and not really see what’s going on. Now, I spend more time smelling the flowers on a leisurely jaunt—looking...
by Erinsads | Jan 18, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? It started when I had what they call Sudden Cardiac Death at a CrossFit gym. I was doing a workout with my 16 year old son, which sucked to have him witness. I remember...
by Erinsads | Jan 18, 2023 | Blog
Can you tell me a little bit about your journey? I didn’t run at all growing up. It’s just something I developed an interest for later in life. I accomplished completing both half and full marathons plus I completed one ultra marathon. I was really getting into...
by Erinsads | Jan 6, 2023 | Blog
Can you tell me a little bit about your SADS journey? My oldest daughter Madeline and I are both affected by ARVC. We’re a very active family and have always been involved in sports. Maddie was in soccer, basketball, gymnastics and dance. Very competitive, very...
by Erinsads | Nov 14, 2022 | Blog
In 2001, Mike’s sister, Jackie, passed away at the age of 31 from undiagnosed ARVC. Mike, his brother, and Jackie’s husband, Adam, formed a support network for affected individuals and their families. Adam is cycling across Canada to raise awareness of ARVC, connect...
