by kymera_editor | Jun 1, 2020 | AEDs, Awareness, CPR, CPR and AED Awareness Week, Long QT Syndrome, SADS Spotlight, Sports/Exercise
Susana participates in triathlons as well as the Paralympics. Name: Susana Rodríguez Age: 32 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta blockers + always carry my AED to training. How were you diagnosed? When I was 28 I started...
by kymera_editor | May 21, 2020 | Awareness, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
Name: Sophie Thatcher Age: 19 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta blockers How were you diagnosed? In 2018, as a junior in high school, I decided to try out for my school’s water polo team as a completely new sport. On the last...
by kymera_editor | Apr 24, 2020 | COVID19, Long QT Syndrome
Nora Lambert, 87 years old! As told by Nora: Here in New Orleans where the virus is rampant, a doctor (Cory Herbert) reviews things each day on one of our top TV channels. For the first time ever, I heard a reference to Long QT Syndrome. He said it so fast with regard...
by kymera_editor | Apr 24, 2020 | COVID19
Andy celebrated his birthday on March 22! I turned 60 on March 22nd. The big party my wife planned was cancelled. I spent my birthday totally alone because my wife is working in California for Roche Diagnostics; her company made one of the tests that they are using to...
by kymera_editor | Apr 23, 2020 | Advocacy, CPVT, Parenting, Sudden Cardiac Arrest
Lily and her sister Charlotte My daughter has CPVT. My daughter, Lily, suffered sudden cardiac arrest while swimming in our pool on July 8, 2012. She went without oxygen for an estimated 11 minutes. Lily continues her recovery from the resulting anoxic brain...
