by kymera_editor | Apr 23, 2020 | Brugada Syndrome, SADS Spotlight, Uncategorized
Name: Justin Price Age: 4 years old Which SADS condition do you have? Brugada Syndrome When were you diagnosed? He was diagnosed one week after his first birthday (April 2016) after going into cardiac arrest at home. How are you treated? He was treated with an ICD,...
by kymera_editor | Apr 20, 2020 | AEDs, ARVC, CPR, SADS Spotlight
Name: Rebecca Schmidling Age: 40 Which SADS condition do you have? ARVC When were you diagnosed? 2012 at age 32. How are you treated? (Beta blocker, ICD, etc.) ablation in 2014, sotalol and an ICD How/when were you diagnosed? I was 32 years old and about 6 weeks...
by kymera_editor | Apr 20, 2020 | Awareness, Genetic Testing, Long QT Syndrome, Sports/Exercise
Steve and his son Mason from a night in the hospital Hello. My name is Mason Inman. I am 12. On March 18th, 2019 while attending school, I collapsed walking the track. I came through they tell me after about 3 minutes. I was taken to hospital by ambulance with my...
by kymera_editor | Apr 20, 2020 | Genetic Testing, ICD, Long QT Syndrome, Parenting, SADS Spotlight
Heather and her son Carter Name: Heather Darling Age: 33 Which SADS condition do you have? Long QT Syndrome Type 2 When were you diagnosed? A little over 20 years ago How are you treated? Beta blockers and ICD How/when were you diagnosed? One morning in fifth grade my...
by kymera_editor | Apr 20, 2020 | Awareness, WPW
I was misdiagnosed as a child: I was told I had a heart murmur and often couldn’t join in with physical activities due to fainting a lot. I now know that’s because my body was being starved of oxygen due to my heart rhythm beating too fast. I was eventually diagnosed...