by kymera_editor | Mar 12, 2019 | Brugada Syndrome, Sudden Cardiac Arrest
The Hernandez family March is Brain Injury Awareness Month. Brain injuries can result from many causes. One of these causes is anoxia (lack of oxygen) as a result of a SCA. As many as 18% of those who survive an out of hospital SCA have a moderate...
by kymera_editor | Mar 8, 2019 | Long QT Syndrome, SADS Spotlight
Name: Danielle and Alanna Mundondo Age: 34 and 4 Which SADS condition do you have? Long QT Syndrome Type 2 When were you diagnosed? Age 19 via abnormal ECG and genetic testing for Danielle. At birth via cord blood genetic testing for Alanna. How are you...
by kymera_editor | Mar 1, 2019 | Advocacy, AEDs
Do you notice AEDs in your community? If you’re at work, out shopping, working out or participating in your everyday activities – could you find the AED immediately if someone were to need it? I’m the mom of two girls with Long QT and I wasn’t in the habit of...
by kymera_editor | Feb 28, 2019 | Advocacy, Rare Disease, Timothy Syndrome
February 28th is Rare Disease Day. The main objective is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. While all SADS conditions are considered rare diseases, we want to focus on...
by kymera_editor | Feb 26, 2019 | Brugada Syndrome, Heart Hero
Terry Bishop was nominated as a Heart Hero by his wife, Whitney. He lives with Brugada Syndrome. Congratulations on being a Heart Hero, Terry! Terry has been so strong through this learning experience we have...
