by kymera_editor | Oct 29, 2019 | Awareness, CPVT, SADS Spotlight, Sudden Cardiac Arrest
Name: Christian “Cole” InmanAge: 14When was your SCA? May 13, 2016/Sept 17, 2018Which SADS condition do you have? CPVTHow are you treated? Nadolol x2 daily, flecainide x2 daily Can you tell us about your SCA? 1st time I was on a fair ride called the...
by kymera_editor | Oct 17, 2019 | Awareness, Conference, CPR, ICD, Long QT Syndrome, Online Patient Communities, SADS Spotlight, Sudden Cardiac Arrest, Support Groups
Name: Heather Whitehurst Age: 36When was your SCA? September 26, 2015 Which SADS condition do you have? LQTS How are you treated? Beta blocker, ICD, paced to not go below 60bpm to help prevent arrhythmia as lower heart rates are a known trigger for me, avoiding meds...
by kymera_editor | Sep 30, 2019 | Awareness, ICD, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
Name: Lisa Paglia Age: 52Which SADS condition do you have? LQT2 When were you diagnosed? 2 years After SCA in 1985 How are you treated? ICD How/when were you diagnosed? I had SCA at 17. Treated incorrectly for years, then appropriately got ICD. I learned my dad,...
by kymera_editor | Sep 20, 2019 | Awareness, Long QT Syndrome, SADS Spotlight
Name: Beth RoyAge: 58What SADS Condition do you have? LQT1 When were you diagnosed? 2016 How are you treated? Nadolol (beta blocker) How were you diagnosed?I was diagnosed with AFIB and prescribed amiodarone. While gardening, attending a picnic or just brushing my...
by kymera_editor | Sep 19, 2019 | Awareness, Brugada Syndrome, SADS Spotlight
Name: Kaitlyn Miller Age: 29 Which SADS condition do you have? Brugada SyndromeWhen were you diagnosed? June 2019 How are you treated? ICD How/when were you diagnosed?I was diagnosed after passing out while in the car with my family. My EKG showed...
by kymera_editor | Sep 4, 2019 | AEDs, Awareness, Connecting with others, Long QT Syndrome, SADS Spotlight, Sports/Exercise
Name: Olivia KenworthyAge: 12Which SADS condition do you have? Long QT Syndrome When were you diagnosed? 2 yrs oldHow are you treated? Beta Blocker How/when were you diagnosed?An aunt “passed out” at work doing jumping jacks. She...
