by SADS Foundation | Feb 26, 2025 | Blog
In 2022, Patrick was diagnosed with an ultrarare genetic variant – CACNA1C – which can cause both neurological and cardiac symptoms. Today, Patrick is making incredible progress – and his heart is monitored, too, to prevent any future cardiac episodes. All of this is...
by SADS Foundation | Feb 25, 2025 | Blog
In October 2014, Paul was at the gym when he suddenly collapsed. His doctors thought the cause was dehydration or stress – until he collapsed again while running just six months later. Paul was originally diagnosed with CPVT after a panel of heart tests –...
by SADS Foundation | Feb 24, 2025 | Blog
In May of 2020, Elizabeth’s close friend passed away suddenly and unexpectedly. She tried to think of a way to support his family after this tragic loss – and wanted to give them a gift that didn’t involve food or flowers, since both are temporary. That’s when...
by SADS Foundation | Feb 24, 2025 | Blog
Morgan was diagnosed with CPVT after passing out on the playground just before her tenth birthday. Morgan – an active, loving, and beautiful little girl with a huge heart – pivoted from playing basketball and soccer to sewing, cooking, and playing the piano. Morgan...
by SADS Foundation | Feb 18, 2025 | Blog
written by Landri My day-to-day life generally consists of school, friends, playing video games, and participating in activities that interest me. Unlike the average teenager, one of my favorite things about school is learning new things and applying that knowledge in...
by SADS Foundation | Feb 13, 2025 | Blog
Running your first marathon while raising money for the SADS Foundation is no easy feat; neither is figuring out how to tell your 9-year-old she has Brugada Syndrome, so Camila “Mila” did something inventive. She used the marathon as a vehicle to tell her daughter,...
