by kymera_editor | Dec 17, 2018 | ICD, Long QT Syndrome
I have a life threatening heart condition called Long QT Syndrome (LQTS). I have an implantable cardioverter-defibrillator (ICD), a small electronic device implanted in my chest, under the muscle just below the collarbone. Its main function is to prevent sudden death...
by kymera_editor | Dec 4, 2018 | Conference, Long QT Syndrome, SADS Spotlight
Mama’s house is gone Fragments remain as part of That once vital family I am one of those fragments My name is Mary I have a story to tell Dirt road, uninsulated house, outhouse, wood stoves- one for heating, the other for cooking, water from a pump nearby. The...
by kymera_editor | Oct 9, 2018 | Announcements, ICD, Long QT Syndrome
When we heard the 2017 SADS Conference was going to be held in Canada, it seemed like a sign for my mom and me as Canadians. In the past, we had not been able to get insurance to travel outside of the country after her sudden cardiac arrest 5 years prior. Since it was...
by kymera_editor | Sep 17, 2018 | Brugada Syndrome, ICD, Long QT Syndrome, Support Groups
Bridget McGaughey, 37, has Long QT Syndrome and Brugada Syndrome. She was diagnosed in 2012 at age 32. Her treatment is an ICD. How/when were you diagnosed? I was diagnosed after a syncope episode in 2012. I did a face plant (ouch) in a parking garage after walking...
by Erinsads | Sep 1, 2018 | Long QT Syndrome
by Kellie Kotraba Moore On the way to high school graduation rehearsal, a classmate made an unusual confession. “I’ve never told you this,” he said. “But I’m really sorry about your heart.” Rather than feeling touched by his words, I felt a little insulted. As an...
by Erinsads | Aug 5, 2018 | Long QT Syndrome, Parenting
by Kellie Kotraba Moore When life becomes a blur of sleepless nights, round-the-clock feedings, diaper changes, and newborn snuggles, it’s easy to put aside self-care and focus all of our energy on the new baby. While it might seem noble to sacrifice our own...
