by kymera_editor | Sep 13, 2021 | Advocacy, Awareness, Long QT Syndrome, Parenting, Schools
Can you tell me a little bit about your family’s SADS journey? In utero, our doctors thought that my daughter Madison had heart block, and I was sent to a specialist. They confirmed that it was not a heart block – she just had a low heart rate. When Madison was...
by kymera_editor | Sep 10, 2021 | Awareness, ICD, Long QT Syndrome, Sports/Exercise
Can you tell me a little bit about your SADS journey? In the spring of 2000, I went into sudden cardiac arrest. After about four weeks of testing, they finally realized I had Long QT Syndrome. I went for six months without a device. My mom really advocated for me, and...
by kymera_editor | Jul 27, 2021 | Awareness, Grief and Loss, Long QT Syndrome
Joriale Horn Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are today? Our oldest daughter, Jori, was 27 and at work when she fell straight back, and was gone. Her office was a chiropractor’s, and Dr. Angela Tarjick, a...
by kymera_editor | Jul 20, 2021 | Awareness, Long QT Syndrome, SCA Survivor, Sudden Cardiac Arrest
Can you tell me a little bit about your family’s SADS journey? When I was little, we knew something was wrong, but we didn’t know what it was. At eight, I was diagnosed with LQTS. At 10, I had a cardiac arrest jumping over a fence. After that, my mom has been really...
by kymera_editor | Jul 2, 2021 | Awareness, Long QT Syndrome
Dr. Michael Vincent with Nora Lambert Can you tell a little bit about your family’s SADS journey? My son Matthew was born in 1969; he was the third child. His first three years were absolutely wonderful –he was a fine healthy boy. He suddenly got a rash one day, and I...
by kymera_editor | Jun 9, 2021 | Awareness, ICD, Long QT Syndrome, SADS Spotlight, Sports/Exercise
At the age of 15 years old, I was a three season athlete in high school: soccer, basketball, and track and field. They were a huge part of how I defined myself – I loved sports. I was in a track and field hurdle event, got dizzy at the finish line, and almost passed...
