by kymera_editor | Mar 2, 2022 | Awareness, Fundraising, Grief and Loss, Long QT Syndrome, Raising Awareness, Raising Funds
Lyla, Sonny Jude’s sister, at the pancake breakfast My son, Sonny Jude, went unresponsive (stopped breathing and his precious heart stopped beating) at six months old. His babysitter saw this and performed CPR and resuscitated him. It was then we...
by kymera_editor | Feb 23, 2022 | Advocacy, Long QT Syndrome, Parenting, SADS Kids, Sports/Exercise
Alexis and her mother, Meredith, at Mayo ClinicAlexis competing this FebruaryAlexis with coach Lee Eves MitchellAlexis Loveless Can you tell me a little bit about your SADS journey – from diagnosis, to your dance competition this past Friday? Alexis: I was shadowing a...
by kymera_editor | Feb 18, 2022 | Awareness, Long QT Syndrome, Parenting
The first time I fainted, I was a freshman in high school. I got up early to go pack boxes in the food kitchen, and I hadn’t eaten breakfast, and all of the sudden the world went black. I came to right away – everyone thought I was just hypoglycemic, so I didn’t go to...
by kymera_editor | Jan 11, 2022 | Fundraising, Grief and Loss, Long QT Syndrome, SADS Spotlight
In 1997, my wife and I had three kids. Our son Michael, who was eleven, had fainted twice. The first time, it was explained away by the E.R. and his pediatrician as a vasovagal episode from unusual activities. The second time, he got an EKG and was examined by a...
by kymera_editor | Jan 4, 2022 | Fundraising, Grief and Loss, Long QT Syndrome, SADS Spotlight
In 1999, we got a phone call on a Friday from our son who lived on a college campus where his sister also went to school. We were on vacation. He said that his sister had passed away – he wanted to tell us before the police called us. Nobody knew why she had passed...
by kymera_editor | Dec 14, 2021 | Awareness, ICD, Long QT Syndrome, SADS Spotlight
Can you tell me a little bit about your SADS journey? I was diagnosed with Long QT when I was eight years old, and was able to get genetic testing as an adult to identify that I have multiple LQTS Type 2 mutations. As a child in the ‘90s, the doctors knew very little...
