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  • SADS Conditions
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SCA Stories: Allyson Koorhan

by kymera_editor | Oct 29, 2020 | Awareness, ICD, Long QT Syndrome, SCA Awareness, SCA Survivor, Sudden Cardiac Arrest

In October of last year, I had just arrived in Boise, ID. I work for an airline and was gearing up for two weeks of business travel, which would end off with my husband joining me in South Korea. Just a few hours into the trip, I wasn’t feeling well and someone who...

SCA Survivor Stories: Sue Morris

by kymera_editor | Oct 12, 2020 | Awareness, CPR, CPR and AED Awareness Week, Heart Hero, ICD, Long QT Syndrome, SCA Awareness, SCA Survivor, Sudden Cardiac Arrest

Sue thanking her hero’s at McCall Fire and Police Department My husband and I were up at our cabin in McCall, ID on August 7, 2020.  My husband, Steve, had just come inside after working in the yard and I was apparently making toast in the kitchen when I told...

SCA Survivor: Daiana

by kymera_editor | Oct 7, 2020 | CPR, Heart Hero, Long QT Syndrome, SCA Survivor, Sports/Exercise, Sudden Cardiac Arrest

The first time I had my cardiac arrest was February 13th, 2016.   My cardiac arrest occurred when I was at baseball practice and I told my coach I did not feel right and was having a lot of pain.  I thought it was just muscle pain, but I ignored it and...

Jessica Robinson and her story of LQTS

by kymera_editor | Jul 17, 2020 | Advocacy, Connecting with others, Long QT Syndrome, SADS Spotlight, Sports/Exercise

My name is Jessica, I am 22 years old and I have LQTS. Throughout my childhood and adolescence, I was involved in many activities, including cheerleading, softball, and my high school’s marching band. While these activities were fun, they caused me to suffer from...

SADS Spotlight: Ayden

by kymera_editor | Jul 10, 2020 | Awareness, CPR, Long QT Syndrome, SADS Kids, SADS Spotlight, SADSConnect, Sports/Exercise

Name: Ayden Age: 13 Diagnosis: Long QT type 1; diagnosed at age 12 I was really sick and dehydrated my mom took me to the doctor and they sent me to the ER to get IV fluids. The doctor did an ECG to see if she could give me some medicine to stop puking and noticed an...

Aurora’s CPR and AED Story

by kymera_editor | Jun 5, 2020 | AEDs, CPR, CPR and AED Awareness Week, Long QT Syndrome, Uncategorized

Aurora went into tachycardia in February 2019, shortly after turning 2. She has Long QT Syndrome and she had RSV and rhinovirus. It was 3AM and my husband and I used our AED and CPR to save her life before paramedics arrived. She is now...
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