by kymera_editor | Jun 1, 2020 | AEDs, Awareness, CPR, CPR and AED Awareness Week, Long QT Syndrome, SADS Spotlight, Sports/Exercise
Susana participates in triathlons as well as the Paralympics. Name: Susana Rodríguez Age: 32 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta blockers + always carry my AED to training. How were you diagnosed? When I was 28 I started...
by kymera_editor | May 21, 2020 | Awareness, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
Name: Sophie Thatcher Age: 19 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta blockers How were you diagnosed? In 2018, as a junior in high school, I decided to try out for my school’s water polo team as a completely new sport. On the last...
by kymera_editor | Apr 24, 2020 | COVID19, Long QT Syndrome
Nora Lambert, 87 years old! As told by Nora: Here in New Orleans where the virus is rampant, a doctor (Cory Herbert) reviews things each day on one of our top TV channels. For the first time ever, I heard a reference to Long QT Syndrome. He said it so fast with regard...
by kymera_editor | Apr 20, 2020 | Awareness, Genetic Testing, Long QT Syndrome, Sports/Exercise
Steve and his son Mason from a night in the hospital Hello. My name is Mason Inman. I am 12. On March 18th, 2019 while attending school, I collapsed walking the track. I came through they tell me after about 3 minutes. I was taken to hospital by ambulance with my...
by kymera_editor | Apr 20, 2020 | Genetic Testing, ICD, Long QT Syndrome, Parenting, SADS Spotlight
Heather and her son Carter Name: Heather Darling Age: 33 Which SADS condition do you have? Long QT Syndrome Type 2 When were you diagnosed? A little over 20 years ago How are you treated? Beta blockers and ICD How/when were you diagnosed? One morning in fifth grade my...
by kymera_editor | Apr 20, 2020 | Genetic Testing, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
Name: Tania Cselka Age: 53 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta Blockers & ICD How/when were you diagnosed? It all started when my husband woke during the night & found me not breathing. He resuscitated me, called an...
