by kymera_editor | Apr 20, 2020 | Awareness, Long QT Syndrome, Parenting, Sports/Exercise
Joey at golf camp through Children’s Heart Association in Cincinnati. When my son, Joey, was six years old, he was diagnosed with Long QT Syndrome Type 2. The day he was diagnosed was the hardest day of my life but I want to tell our story in the hopes that my...
by kymera_editor | Apr 20, 2020 | Genetic Testing, Long QT Syndrome, Parenting, SADS Spotlight
Kristin’s daughter the day she wore her first holter monitor. Name: Kristin Ristine Age: 34 Which SADS condition do you have? Long QT Syndrome Type 1 How are you treated? On beta blockers How/when were you diagnosed? My mom was diagnosed while at the hospital...
by kymera_editor | Apr 7, 2020 | ICD, Long QT Syndrome, Parenting, SADS Spotlight
Natalie in Maui on a snorkeling tour! Name: Natalie J Age: 27 Which SADS condition do you have? Long QT When were you diagnosed? August 2010 How are you treated? (Beta blocker, ICD, etc.) Beta blocker and ICD How/when were you diagnosed? I was diagnosed at 17...
by kymera_editor | Jan 13, 2020 | Advocacy, Awareness, ICD, Long QT Syndrome, SADS Spotlight, Support Groups
Name: Jaclyn Kernion Age: 38Which SADS condition do you have? LQTS1How are you treated? Treated with beta blockers from age 14 and AICD implant at age 24 (on my 4th device currently) When were you diagnosed? I was CORRECTLY diagnosed after 9 yrs of fainting and...
by kymera_editor | Oct 24, 2019 | Advocacy, AEDs, CPR, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
I am 27 years old and currently living with a SADS condition (Long QT Syndrome). I am always happy to share my story as it sheds light to the importance and necessity of bystander CPR along with the use of an AED. In 2007 I was 16 years old, running the mile at...
by kymera_editor | Oct 17, 2019 | Awareness, Conference, CPR, ICD, Long QT Syndrome, Online Patient Communities, SADS Spotlight, Sudden Cardiac Arrest, Support Groups
Name: Heather Whitehurst Age: 36When was your SCA? September 26, 2015 Which SADS condition do you have? LQTS How are you treated? Beta blocker, ICD, paced to not go below 60bpm to help prevent arrhythmia as lower heart rates are a known trigger for me, avoiding meds...
