by kymera_editor | Sep 30, 2019 | Awareness, ICD, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
Name: Lisa Paglia Age: 52Which SADS condition do you have? LQT2 When were you diagnosed? 2 years After SCA in 1985 How are you treated? ICD How/when were you diagnosed? I had SCA at 17. Treated incorrectly for years, then appropriately got ICD. I learned my dad,...
by kymera_editor | Sep 20, 2019 | Awareness, Long QT Syndrome, SADS Spotlight
Name: Beth RoyAge: 58What SADS Condition do you have? LQT1 When were you diagnosed? 2016 How are you treated? Nadolol (beta blocker) How were you diagnosed?I was diagnosed with AFIB and prescribed amiodarone. While gardening, attending a picnic or just brushing my...
by kymera_editor | Sep 4, 2019 | AEDs, Awareness, Connecting with others, Long QT Syndrome, SADS Spotlight, Sports/Exercise
Name: Olivia KenworthyAge: 12Which SADS condition do you have? Long QT Syndrome When were you diagnosed? 2 yrs oldHow are you treated? Beta Blocker How/when were you diagnosed?An aunt “passed out” at work doing jumping jacks. She...
by kymera_editor | Aug 9, 2019 | Camp, Connecting with others, ICD, LCSD, Long QT Syndrome
Since receiving my diagnosis of LQTS Type 5 at the age of 12, I had always wanted to go to a heart camp. The children’s hospital where I received care in Alberta, Canada had posters for a heart camp in California on the wall but when I asked my doctor about anything...
by kymera_editor | Jul 5, 2019 | AEDs, ICD, Long QT Syndrome, SADS Spotlight, Timothy Syndrome
Name: Aurora Age: 2Which SADS condition do you have? Timothy SyndromeWhen were you diagnosed? 10 months for LQTS & 1 year for Timothy Syndrome How are you treated? Beta blocker (propranolol), ICD (implanted February 19, 2019) How/when were you diagnosed?...
by kymera_editor | Jul 1, 2019 | Camp, Long QT Syndrome, SADS Spotlight, Sports/Exercise
Name: CJ HeilAge: 20Which SADS condition do you have? Long QT SyndromeWhen were you diagnosed? Oct. 2010How are you treated? Beta Blocker (Nadolol) What has been the biggest challenge you’ve faced in living with your diagnosis? Knowing that even though it’s not...
