by kymera_editor | Apr 23, 2020 | Brugada Syndrome, SADS Spotlight, Uncategorized
Name: Justin Price Age: 4 years old Which SADS condition do you have? Brugada Syndrome When were you diagnosed? He was diagnosed one week after his first birthday (April 2016) after going into cardiac arrest at home. How are you treated? He was treated with an ICD,...
by kymera_editor | Apr 20, 2020 | AEDs, ARVC, CPR, SADS Spotlight
Name: Rebecca Schmidling Age: 40 Which SADS condition do you have? ARVC When were you diagnosed? 2012 at age 32. How are you treated? (Beta blocker, ICD, etc.) ablation in 2014, sotalol and an ICD How/when were you diagnosed? I was 32 years old and about 6 weeks...
by kymera_editor | Apr 20, 2020 | Genetic Testing, ICD, Long QT Syndrome, Parenting, SADS Spotlight
Heather and her son Carter Name: Heather Darling Age: 33 Which SADS condition do you have? Long QT Syndrome Type 2 When were you diagnosed? A little over 20 years ago How are you treated? Beta blockers and ICD How/when were you diagnosed? One morning in fifth grade my...
by kymera_editor | Apr 20, 2020 | Genetic Testing, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
Name: Tania Cselka Age: 53 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta Blockers & ICD How/when were you diagnosed? It all started when my husband woke during the night & found me not breathing. He resuscitated me, called an...
by kymera_editor | Apr 20, 2020 | CPVT, SADS Spotlight, Sports/Exercise, Sudden Cardiac Arrest
Name: Karin Blåder, from Sweden Age: 33 Which SADS condition do you have? CPVT How are you treated? (Beta blocker, ICD, etc.) Beta blocker (Inderal) and “Tambocor” How/when were you diagnosed? I was diagnosed in the summer of 2019. I passed out at the gym...
by kymera_editor | Apr 20, 2020 | CPVT, ICD, Parenting, SADS Spotlight, Sudden Cardiac Arrest
Name: Danielle Age: 38 Which SADS condition do you have? CPVT When were you diagnosed? Oct 2017, after 20 + yrs of misdiagnosis How are you treated? (Beta blocker, ICD, etc.) ICD placed in November 2017, nadolol and flecanide How/when were you diagnosed? I had a...
