by kymera_editor | Apr 12, 2021 | Advocacy, ICD, Long QT Syndrome, Sports/Exercise
Growing up I suffered from frequent fainting spells and would talk about my heart “feeling funny” while playing competitive sports. I was a happy and healthy kid who didn’t complain much, so my mom immediately took me to a cardiologist when I first mentioned this. A...
by kymera_editor | Oct 7, 2020 | CPR, Heart Hero, Long QT Syndrome, SCA Survivor, Sports/Exercise, Sudden Cardiac Arrest
The first time I had my cardiac arrest was February 13th, 2016. My cardiac arrest occurred when I was at baseball practice and I told my coach I did not feel right and was having a lot of pain. I thought it was just muscle pain, but I ignored it and...
by kymera_editor | Sep 22, 2020 | CPVT, SADS Kids, SADS Spotlight, SADSConnect, Sports/Exercise
Name: Karly Gonthier Age: 13 Which SADS condition do you have? CPVT When were you diagnosed? June, 2019 How are you treated? (Beta blocker, ICD, etc.) Beta Blocker, calcium channel blocker Personal Questions How/when were you diagnosed? The day after my 13th...
by kymera_editor | Jul 17, 2020 | Advocacy, Connecting with others, Long QT Syndrome, SADS Spotlight, Sports/Exercise
My name is Jessica, I am 22 years old and I have LQTS. Throughout my childhood and adolescence, I was involved in many activities, including cheerleading, softball, and my high school’s marching band. While these activities were fun, they caused me to suffer from...
by kymera_editor | Jul 10, 2020 | Awareness, CPR, Long QT Syndrome, SADS Kids, SADS Spotlight, SADSConnect, Sports/Exercise
Name: Ayden Age: 13 Diagnosis: Long QT type 1; diagnosed at age 12 I was really sick and dehydrated my mom took me to the doctor and they sent me to the ER to get IV fluids. The doctor did an ECG to see if she could give me some medicine to stop puking and noticed an...
by kymera_editor | Jun 1, 2020 | AEDs, Awareness, CPR, CPR and AED Awareness Week, Long QT Syndrome, SADS Spotlight, Sports/Exercise
Susana participates in triathlons as well as the Paralympics. Name: Susana Rodríguez Age: 32 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta blockers + always carry my AED to training. How were you diagnosed? When I was 28 I started...
