by SADS Foundation | Jul 1, 2025 | Blog
In the fall of 2013, Steve and his wife traded swim practice drop-off and pick-up duty for long nights under the glaring fluorescent lights of a pediatric CVICU. Kate, their 15-year-old daughter, had just been hospitalized for a syncopal (fainting) episode during a...
by SADS Foundation | Jul 1, 2025 | Blog
The SADS Foundation encourages families to take a medical history of their immediate and extended family. What follows is a prime example of why. Patrei, a mother of three, didn’t know Long QT ran in her family until 2020, but her aunt Heidi was diagnosed in 1990. How...
by SADS Foundation | Jun 23, 2025 | Blog
by Danielle Mundondo It’s been over five years since I last wrote. That piece was called Holding My Breath. Today, I come to you with its natural follow-up: Letting Go. Alanna is doing well—thankfully, she hasn’t experienced any cardiac events that we’re aware...
by SADS Foundation | Jun 11, 2025 | Blog
Our Foundation has some exciting – and also a bit sad – organizational news to share: CEO & President, Alice Lara, is retiring this month after 23 years as the CEO of the SADS Foundation. You can read the press release here, and learn more about our incoming CEO,...
by SADS Foundation | Jun 2, 2025 | Blog
Antwan experienced Sudden Cardiac Arrest in middle school – leading to a diagnosis of Hypertrophic Cardiomyopathy (HCM). Today, he wants other teens to know that a diagnosis like HCM doesn’t have to hold you back from living your life. He and his mother Raquel...
by SADS Foundation | May 7, 2025 | Blog
by Sue Bresnahan When you first get a rare genetic diagnosis for your child, it’s like the floor disappears beneath your feet. As a pediatric nurse for 20 years and a mom of three, I knew something was off with my youngest son, Patrick. He didn’t move much. He didn’t...
