by SADS Foundation | Jun 23, 2025 | Blog
by Danielle Mundondo It’s been over five years since I last wrote. That piece was called Holding My Breath. Today, I come to you with its natural follow-up: Letting Go. Alanna is doing well—thankfully, she hasn’t experienced any cardiac events that we’re aware...
by SADS Foundation | Jun 11, 2025 | Blog
Our Foundation has some exciting – and also a bit sad – organizational news to share: CEO & President, Alice Lara, is retiring this month after 23 years as the CEO of the SADS Foundation. You can read the press release here, and learn more about our incoming CEO,...
by SADS Foundation | Jun 2, 2025 | Blog
Antwan experienced Sudden Cardiac Arrest in middle school – leading to a diagnosis of Hypertrophic Cardiomyopathy (HCM). Today, he wants other teens to know that a diagnosis like HCM doesn’t have to hold you back from living your life. He and his mother Raquel...
by SADS Foundation | May 7, 2025 | Blog
by Sue Bresnahan When you first get a rare genetic diagnosis for your child, it’s like the floor disappears beneath your feet. As a pediatric nurse for 20 years and a mom of three, I knew something was off with my youngest son, Patrick. He didn’t move much. He didn’t...
by SADS Foundation | Apr 14, 2025 | Blog
In college, Alex experienced her first symptom of a serious heart condition – which was dismissed at the time as a panic attack. It’s now been seven years since her diagnosis of ARVC, and she’s joining the SADS Foundation’s ACM Steering Committee to help others who...
by SADS Foundation | Apr 7, 2025 | Blog
I am a 26-year old with a rare heart condition called J-Wave Syndrome. I went into cardiac arrest in 2016 at the age of 18 and received my first ICD at that time. I’ve had many shocks since then but with the help of the Mayo Clinic and Dr. Ackerman I have not had a...
