by kymera_editor | Apr 20, 2020 | Awareness, Genetic Testing, Long QT Syndrome, Sports/Exercise
Steve and his son Mason from a night in the hospital Hello. My name is Mason Inman. I am 12. On March 18th, 2019 while attending school, I collapsed walking the track. I came through they tell me after about 3 minutes. I was taken to hospital by ambulance with my...
by kymera_editor | Apr 20, 2020 | CPVT, SADS Spotlight, Sports/Exercise, Sudden Cardiac Arrest
Name: Karin Blåder, from Sweden Age: 33 Which SADS condition do you have? CPVT How are you treated? (Beta blocker, ICD, etc.) Beta blocker (Inderal) and “Tambocor” How/when were you diagnosed? I was diagnosed in the summer of 2019. I passed out at the gym...
by kymera_editor | Apr 20, 2020 | Awareness, Long QT Syndrome, Parenting, Sports/Exercise
Joey at golf camp through Children’s Heart Association in Cincinnati. When my son, Joey, was six years old, he was diagnosed with Long QT Syndrome Type 2. The day he was diagnosed was the hardest day of my life but I want to tell our story in the hopes that my...
by kymera_editor | Feb 18, 2020 | AEDs, CPVT, Genetic Testing, SADS Spotlight, Sports/Exercise
Bella getting ready to tumble with a heart monitor. GO BELLA! Name: Bella AlvarezAge: 11Which SADS condition do you have? CPVTWhen were you diagnosed? December 2018How are you treated? Beta Blocker (Metoprolol) How/when were you diagnosed? I was diagnosed through...
by kymera_editor | Jan 30, 2020 | Advocacy, Brugada Syndrome, Connecting with others, Heart Hero, ICD, Parenting, Rare Disease, SADS Spotlight, Sports/Exercise
Name: Tisha M. Age: 36 y/o Which SADS condition do you have? Brugada Syndrome When were you diagnosed? 12/27/19 How are you treated? (Beta blocker, ICD, etc.) ICD How/when were you diagnosed? I went to Urgent Care on 12/27/19 with complaints...
by kymera_editor | Nov 5, 2019 | CPVT, LCSD, Managing Multiple Diagnoses, Sports/Exercise
Hi! My name is Holly Mulder. I am 29 years old and I have CPVT. I live in Charlotte, NC with my husband and English Bulldog, Oliver. Oliver When I was 22, I started training for my first triathlon. A few years later, I had completed over 20 short...
