Heart Month Stories: Ishani’s LQTS Story

A normal summer day at the pool turned into a rare genetic heart condition diagnosis for thirteen year old Ishani. After feeling dizzy, Ishani visited with her doctor, who said she probably had low blood sugar – and suggested she have an energy drink. Two days later,...

SADS Exercise/Movement Challenge Forum

For the final week, we want you to choose the activity. Go on a bike ride, do some jumping jacks, or just turn on some music and dance, etc. And then reach out and connect with a friend. Make sure you fill out the last survey as well. If you’d like to join our...

David’s ARVC Story

In November of 2021, six weeks after hiking Mount Whitney – the highest mountain in the contiguous United States – David fainted while taking his dog, Honey, for a nighttime walk. “My entire life, I was very active,” says David, who played baseball in college and...

ARVC Awareness: Nathan’s Story

During a typical morning run in August of 2022, Nathan became lightheaded and had to lie down on the sidewalk. After he was found by two other runners, he was taken to the hospital, where he was diagnosed with ARVC – and he’s joining the SADS Foundation ARVC Steering...

From Cycling to Dog Agility: Kathy’s ARVC Journey

For many years before her diagnosis, Kathy’s heart beat in a strange rhythm – but she always chalked it up to being a competitive athlete. After being diagnosed with ARVC (arrhythmogenic right ventricular cardiomyopathy), Kathy switched from cycling to training her...