by Erinsads | Feb 23, 2024 | Awareness
We need to hear YOUR voice, YOUR story, YOUR experience with LQTS so we can represent the scope of impact this condition makes on families and individuals. We need the FDA to see how many families are impacted and how much of a difference new therapies would make –...
by Erinsads | Feb 2, 2024 | Advocacy, Awareness, Blog, Forum, Raising Awareness, Sports/Exercise
Welcome to The SADS Exercise/Movement Challenge! We are encouraging the SADS community to incorporate healthy movement throughout the month of February. The challenge starts February 1st and will run for the entire month. Want to connect with others who are...
by Erinsads | Jan 10, 2024 | Advocacy, Awards, Awareness, Blog, Connecting with others, Long QT Syndrome
Annie Lucatuorto, daughter of Cathleen and board member Anthony, had a cardiac arrest while swimming at a YMCA when she was ten years old. After genetic testing revealed LQTS, he got in touch with the SADS Foundation – and had other family members tested, resulting...
by kymera_editor | Jul 12, 2022 | Awareness, Long QT Syndrome, Parenting
Chaunté and her daughter Kadence I’m a mom to three girls. When my second daughter, Kadence, was six months old, I took her to a pediatrician for a routine well-child check and immunizations. And when he was doing the initial examination, he noticed that her...
by kymera_editor | Apr 26, 2022 | Awareness, Brugada Syndrome, Parenting, SADS Kids
Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are today? Our journey starts with my husband’s daughter, who was having cardiac symptoms. The doctors didn’t know what was going on, so they did genetic testing, and found out...
by kymera_editor | Apr 19, 2022 | ARVC, Awareness, Heart Failure, Heart Transplant, Sports/Exercise
When Joelle was 12, she passed out in church – and testing revealed that the culprit was ARVC. And it progressed quickly – a year after diagnosis, at 13, Joelle got an ICD to help regulate the “electrical chaos” in her heart. Joelle had been a competitive figure...
