by kymera_editor | Oct 29, 2019 | Awareness, CPVT, SADS Spotlight, Sudden Cardiac Arrest
Name: Christian “Cole” InmanAge: 14When was your SCA? May 13, 2016/Sept 17, 2018Which SADS condition do you have? CPVTHow are you treated? Nadolol x2 daily, flecainide x2 daily Can you tell us about your SCA? 1st time I was on a fair ride called the...
by kymera_editor | Oct 24, 2019 | Advocacy, AEDs, CPR, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
I am 27 years old and currently living with a SADS condition (Long QT Syndrome). I am always happy to share my story as it sheds light to the importance and necessity of bystander CPR along with the use of an AED. In 2007 I was 16 years old, running the mile at...
by kymera_editor | Oct 21, 2019 | Brugada Syndrome, CPR, ICD, Online Patient Communities, SADS Spotlight, Sudden Cardiac Arrest
Name: Dave Whelan Age: 57 When was your SCA? Feb 10, 2012Which SADS condition do you have? Brugada Syndrome How are you treated? ICD and regular cardiology follow up Can you tell us about your SCA? My SCA occurred while working on a remote mine site in the...
by kymera_editor | Oct 17, 2019 | Awareness, Conference, CPR, ICD, Long QT Syndrome, Online Patient Communities, SADS Spotlight, Sudden Cardiac Arrest, Support Groups
Name: Heather Whitehurst Age: 36When was your SCA? September 26, 2015 Which SADS condition do you have? LQTS How are you treated? Beta blocker, ICD, paced to not go below 60bpm to help prevent arrhythmia as lower heart rates are a known trigger for me, avoiding meds...
by kymera_editor | Oct 16, 2019 | Awareness, CPR, ICD, LCSD, Parenting, SADS Spotlight, Sudden Cardiac Arrest, Support Groups
Name: Lila Wolfram Age: 4When was your SCA? October 2015 (8 months old)Which SADS condition do you have? Idiopathic Ventricular TachycardiaHow are you treated? Lila has a Medtronic Evera ICD. She had a left side sympathetic denervation (LCSD) performed at 10 months...
by kymera_editor | Sep 30, 2019 | Awareness, ICD, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
Name: Lisa Paglia Age: 52Which SADS condition do you have? LQT2 When were you diagnosed? 2 years After SCA in 1985 How are you treated? ICD How/when were you diagnosed? I had SCA at 17. Treated incorrectly for years, then appropriately got ICD. I learned my dad,...
